After the scans last week and the tumor board (where all doctors together are discussing the scans and what to do) we had a long conversation yesterday. From the tumor side, the results for lungs and head are looking ’not … Weiterlesen →
Dubai was fantastic, we spent a terrific first communion of Luka a week later and now that all the things we were looking forward for so long passed by so quickly, we are terrified and waiting for the scans. Thursday … Weiterlesen →
Sitting here, right now and looking back at those past few weeks, I would have to describe my feelings with disbelief, agony, astonishment, joy, pain but definitely blessed ! Only now, I am wondering how we got through this period … Weiterlesen →
This week will be Luka’s 9th birthday and we are all looking forward to friday ! Another milestone, such as christmas and new years before and we will make the best of it 😉 The last couple of weeks could … Weiterlesen →
As I have been blogging throughout the whole year, I decided this christmas to sent no cards ;( Anyhow, we have been overwhelmed by all cards, packages, mails and texts and I wanted to thank you for all of your … Weiterlesen →
Cyberknife…starting soon Next step done….today we had the cyberknife treatment and believe it or not, after two platelet transfusions on the ward (in case of bleeding), 80 minutes of radiation (just the pure radiation time !!!) and in total 3,5 … Weiterlesen →
OK, as you know us and as you know Luka we are taking it again step by step. After the devastating news last week we had some time to set up a new strategy and a new plan of how … Weiterlesen →
While I am still able to write…. the PET/CT scan did not show the things we wanted. It actually didn’t even ‚light up‘ the spot we found on the CT last week. Unfortunately the CT revealed a more catastrophic scenario … Weiterlesen →
Just came back from the thorax CT…which unfortunately showed that the spot in Luka’s right lung is increasing in size as well as getting more dense. We are currently waiting for another PET scan next week which will (hopefully not) … Weiterlesen →