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Startseite→english→Friday, 6th of March 2015: ‚The Unpredictable’…

Friday, 6th of March 2015: ‚The Unpredictable’…

Luka Luka Luka Luka Veröffentlicht am von

Sitting here, right now and looking back at those past few weeks, I would have to describe my feelings with disbelief, agony, astonishment, joy, pain but definitely blessed ! Only now, I am wondering how we got through this period of time, how we were able to cope with Luka feeling so unwell, fading away,  especially when end of January everybody expected the worst…

If this is the worst, I want more !!!!

Cheeky monkeys !

Cheeky monkeys !

Luka is at school, fighting with homework, tests, his class mates and siblings and he is playing outside like every other child !

As always Luka did decide to take his own way. He is as unpredictable as always and when the doctors confirmed the encouraging result of shrinking lung metastasis of the last scan in February, Luka obviously took his own turn.

We spend a wonderful time in London, Luka had his birthday party with his ‚London mates‘, lunch, movies, cake and playtime…… he had his diverse sleepovers (heavily spoiled by their mums ;)), he spent a day at DS London in his former class and he enjoyed every single minute ! Thanks to everybody making this visit so special again !!!!

When we returned back home, Luka continued with the same spirits and by now I would say he is almost back to normal. Unbelievable, given the fact that we started another regimen of chemo 2 weeks ago. The results of the mice trials showed quite some good effects on the growth of the tumors  (the combination of chemo and the one medication he has been starting in December). So we give it another try and hope for the best ! (Die Ergebnisse der Maeuseversuche haben recht eindeutig einen positiven Einfluss der Kombination aus Chemo und eines weiteren Medikamentes auf das Wachstum der Tumore gezeigt)

Looking back now, we found out that Luka had a severe flu, and a pneumonia (Lungenentzuendung) which caused the pain end of January.

But no matter how bad we all felt, what might have caused the lung metastasis to shrink – is it ‚mice drugs‘, is it chemo, is it our alternative practitioner ? – ….my heart skips a beat whenever I see Luka playing , whenever I hear him laughing and whenever he is enjoying himself !  Right now it skips quite some beats !!!

We are even having some cautious and very fragile plans…Luka’s birthday party with his class mates at home on Sunday, a trip to Oberammergau (for the alternative practitioner) and to Majorca (?) in the easter break…..and Luka’s first communion in April…… we are taking it slowly, with respect but joy !

We will have the next scans of head and lungs soon and I don’t even dare to think about it….. so we are concentrating on more important things…..such as building up the trampoline again as spring finally arrived and with preparations for Luka’s birthday party on Sunday !!!

Kommentare

Friday, 6th of March 2015: ‚The Unpredictable’… — 12 Kommentare

  1. Liebe Steffi,

    unglaublich… und unglaublich schön!

    Mit lieben Grüßen, den allerbesten Wünschen für die gesamte tolle Familie, die Ihr seid- und Luka gaaaaanz viel Spaß bei seiner Party!

    Tina & Co.

    Antworten ↓

  2. Liebe Steffie,

    tolle Bilder, tolle Nachrichten. … his own way… , das ist es wohl!!! Beim Lesen hat mein Herz auch höher geschlagen.
    Eine schöne Party!! und viel Freude!

    Ganz viele liebe Grüße!

    Cynthia

    Antworten ↓

  3. Tolle Nachrichten und schöne Bilder.

    Wir wünschen Euch einen guten Start in den Frühling
    und viel Spaß bei allen Vorhaben.

    Liebe Grüße aus Weilheim.

    Antworten ↓

  5. habe mich sehr gefreut deinen Bericht zu lesen und wünsche Luka eine ganz tolle Feier und auch für die nächsten Schritte und Pläne bin ich in Gedanken bei euch!
    liebe Grüsse aus Qatar

    Antworten ↓

  6. Ich habe mich sehr gefreut deinen Bericht zu lesen und wünsche Luka eine ganz tolle Feier und auch für die nächsten Schritte und Pläne bin ich in Gedanken bei euch!
    liebe Grüsse aus Qatar

    Antworten ↓

  7. Wir freuen uns auch sehr über diese tollen Bilder u. die guten Nachrichten!
    Wir wünschen euch weiterhin alles Gute u. dass alle Pläne in Erfüllung gehen.

    Antworten ↓

  8. Ein bischen planen darf man doch, es ist alles nur zum Wohl von Luka….
    Macht weiter so und genießt wirklich jeden Sonnenstrahl und jedes Frühlingsblümchen, daran aufzutanken tut doch immer wieder gut und ist der beste Weg!

    Ihr seid einfach erstaunlich und der eigene Weg ist der Beste……

    Alles Liebe, viel Sonne in Oberammergau wünschen Euch die
    Rösch´s

    Antworten ↓

  9. Ich habe Eure News gestern erst gelesen, und da war hier in England Muttertag! Und das war so ein schönes zusätzliches Geschenk! Weiter so: Trampolin aufstellen und nicht aufhören zu planen!

    Antworten ↓

  10. Liebe Stroh Familly!

    Was für gute Neuigkeiten!! Wir wünschen Euch, dass Luka weiterhin alle überrascht und zum Staunen bringt!!

    Alles Liebe und Gute!!

    Big hugs,

    The Davies family

    Antworten ↓

  11. Liebe Steffie, ich freue mich sehr, dass es bei Euch aufwärts geht. Es ist wunderbar Luka so normal und zufrieden im Kreise seiner Familie und Freunde zu sehen. Bitte mehr solche Bilder!!!! Liebe Grüße und bis bald, Britta

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