So many people are asking us: ‚How are you ?‘ So, how are we ? Today is a good day, (a little more than 4 month after Luka passed away) I would say we are good, we are coping rather … Weiterlesen →
Looking back at the last 4 weeks, we have been lucky spending some good moments with Luka. It seems he concentrated and saved all his remaining power for a few occasions. We have not been able to go away for … Weiterlesen →
Reading through my last note makes me wonder where time goes….and even though our whole life is about time right now… Thinking back of the day when we spoke to the kids about the stage of Luka’s illness seems to … Weiterlesen →
Dear all, sorry for being so quiet for so long but unfortunately we have to get prepared for the worst…I will provide you with more information asap but tonight we have to have another Raclette evening and I am in … Weiterlesen →
Majorca! So familiar, so loved, so hot this year !!! We are having a good time but a bumpy time…First two days have been great but then Luka came down with terrible tummy aches. Possibly a tummy bug…possibly not…. Don’t … Weiterlesen →
After a few long and draining weeks with all kind of problems and bad news we decided to give us all a break. Luka’s blood counts are unfortunately not good/high enough to participate in the London trial. All kind of … Weiterlesen →
As always, I can’t believe how time is flying by, by looking back at the last couple of weeks. But if you are going forward, it is hard to see the improvement. Looking back now, we can see a slow … Weiterlesen →
When we came home 2 weeks ago we thought we just have to get Luka back into shape and give him some time to recover. The first week he started slowly but steady and by the end of the week … Weiterlesen →
We actually managed to come home last friday evening…it was a rather bumpy road as Luka was scared that the pain, the headaches from the bleeding might reoccur…It took us and the doctor a while to convince him that we … Weiterlesen →
I can’t believe how time is flying by. Sorry to keep you all waiting for such a long time but to be honest, we needed to ‚consolidate‘ and we still don’t know exactly what our path will be by now. … Weiterlesen →