As we have been offline with phone and internet (THANK YOU TELEKOM !) for more than a week and now all have got the flu I will shortly summarize the last 2 weeks:

The cyberknife treatment took place the day before Luka’s birthday (29th of Jan) and Luka was a real star again. Unfortunately he started to be in a lot of pain. His back (between the shoulder blades) was hurting that much, so we had to start a pain treatment, closely watched by the palliative team. This was as well over his birthday, as you can tell from his expression on some of the pics… We had to combine a dressing for pain relief (Schmerzpflaster) with Morphine and other pain killers…..very scary for us but eventually we managed to control the pain so he could enjoy his birthday !

For his birthday he got another special present and we all went to an observatory that evening. It was cloudy the whole day but when we arrived the sky cleared and we were able to see plenty of amazing stars and even planets ! Anyhow the pennyboard seemed to be the best gift 😉

Since the pain did not stop over the next few days we all feared the worst. Luka’s primary tumor was located exactly through his spine between the shoulder blades…so we had another CTscan of his thorax. This was planned anyhow, to check the stage of lung metastasis. I don’t know how we managed to get through that period but we made it and the outcome was astonishing:

all lung metastasis have been shrinking and no new lesions have been found in his upper body ! (die Lungenmetastasen sind kleiner geworden und es gibt keine neuen oder auffaellige Stellen in seinem Oberkoerper !).

One of the metastasis located close to the rib cage could explain the back pain. As well the head metastasis (the one we treated with cyberknife the week before) is not detectable anymore (only if you feel with fingers, we did not do a scan…). This was another news we had to digest…as it feeds HOPE.

Inbetween we managed to taper off all pain killers and Luka is painfree without medications. He is still quite pale (but you should see the rest of the family ;)…) and receiving a transfusion of immunoglobulines today. It seems that he is picking up literally ervery little virus going around. And there is a lot going around currently ! Last week the whole family was stuck ‚in bed‘ (rather in front of the TV) with a flu. So we hope for some improvement next week !

We used the good news to book some flights to London and we will see our friends back there !!!!

Meanwhile we do hope so much for no bad news with regard to the brain metastasis….we might start a reduced course of chemo next week to keep this area under control. But inbetween we use the time to get some british power 😉