After the scans last week and the tumor board (where all doctors together are discussing the scans and what to do) we had a long conversation yesterday. From the tumor side, the results for lungs and head are looking ’not too bad‘, meaning all metastasis in Luka’s head are either decreasing in size or stable in size. No significant new metastasis to see, only two spots to be controlled in the near future. After all we have been through in November up until February, where the tumor and metastasis have been growing like weeds, a very good result. The 3 metastasis in his lungs are unfortunately increasing slightly in size (after a decrease in February), but no new metastasis to see. All in all a ‚quite‘ good result for this stage, especially giving the shape that Luka is in but as well always depending from where you are coming and what you are hoping for….
The major problem we are having now, is that Luka is in severe pain (again). It started in January for the first time and actually on the day of his first communion, it came back again. The CT revealed that one of the vertebra in his spine collapsed (quasi ein Bandscheibenvorfall zwischen den Schulterblaettern). This was where the primary tumor was located (6 years ago (6 !)…). The vertebra between his shoulder blades has been treated with intensive radiation (Strahlentherapie) 5 years ago. The current CT shows that the upper side collapsed and pinches the nerv, which gives pain in chest and back.
This collapse could be either a result of the former radiation therapy and chemo (a side effect over the years), but given the fact that the primary tumor started to grow in this area, it could also be a result of new metastasis which are destroying the bone…. Now we need to handle the severe pain and we decided to go for another MRI to get a more specified diagnosis. I just want to know what we might have to deal with if it is not a side effect of radiation….
As you can see, the story continues with a new chapter and we are trying keep our heads above the water (and feet can’t touch the ground ) ….currently I am struggeling a bit on that ….but only for the moment because I can’t bear seeing Luka in pain, especially after the last 2 wonderful month ! Let’s get the pain under control and stick to our slogan:
Falling down – getting up – straighten up the crown and walking on 😉
Hinfallen – aufstehen – Krone richten und weiterlaufen 😉