Sadly Luka had to leave us today. At 9:35 he stopped breathing after struggling for such a long time. We feel blessed that he was able to leave quietly and in peace after all….a typical Luka! Give us some time … Weiterlesen →
After two sleepless nights with severe fits and seizures we had to sedate Luka -slightly- hopefully he is a bit more stable tonight. anyhow we all do not want to be alone tonight……
Weiterlesen →It is heartbreaking to watch Luka literally disappearing. Day by day he is loosing more and more control over his body and I have the feeling I am loosing my mind more and more. At least we still have the … Weiterlesen →
…mission fulfilled! After some sleepless nights we had to take the decision to -lets put it this way- ‚almost sedate‘ Luka in order to get the pain under control. Finally last night we had almost 12 hours of sleep…. we, … Weiterlesen →
Love is….. ….to smile even though your heart threatens to break. ….to smile back even though you are in agony. …to play a board game even if you rather want to break down. ….to play a board game even if … Weiterlesen →
Looking back at the last 4 weeks, we have been lucky spending some good moments with Luka. It seems he concentrated and saved all his remaining power for a few occasions. We have not been able to go away for … Weiterlesen →