Reading through my last note makes me wonder where time goes….and even though our whole life is about time right now… Thinking back of the day when we spoke to the kids about the stage of Luka’s illness seems to … Weiterlesen →
Dear all, sorry for being so quiet for so long but unfortunately we have to get prepared for the worst…I will provide you with more information asap but tonight we have to have another Raclette evening and I am in … Weiterlesen →
Majorca! So familiar, so loved, so hot this year !!! We are having a good time but a bumpy time…First two days have been great but then Luka came down with terrible tummy aches. Possibly a tummy bug…possibly not…. Don’t … Weiterlesen →
After a few long and draining weeks with all kind of problems and bad news we decided to give us all a break. Luka’s blood counts are unfortunately not good/high enough to participate in the London trial. All kind of … Weiterlesen →
As always, I can’t believe how time is flying by, by looking back at the last couple of weeks. But if you are going forward, it is hard to see the improvement. Looking back now, we can see a slow … Weiterlesen →
When we came home 2 weeks ago we thought we just have to get Luka back into shape and give him some time to recover. The first week he started slowly but steady and by the end of the week … Weiterlesen →
We actually managed to come home last friday evening…it was a rather bumpy road as Luka was scared that the pain, the headaches from the bleeding might reoccur…It took us and the doctor a while to convince him that we … Weiterlesen →
After a quite calm but short night we got spoiled by the optrician (or rather eye doctor) telling us after an examination that both (!) eyes are back to 80% of full vision! Very good improvement. Anyhow, the view to … Weiterlesen →
Quick update: the bleeding came from one metastasis that has been cyber knifed in January. We can not definitely tell why it started to bleed; because of the cyber knife or because of uncontrolled growth? we just leave this unanswered … Weiterlesen →
Luka had a brain haemorrhage last Friday literally out of the blue. 2 CT’s over the weekend showed that fortunately the bleeding stopped. We are in hospital and are awaiting results of todays MRI. We need to know if it … Weiterlesen →