After a few long and draining weeks with all kind of problems and bad news we decided to give us all a break. Luka’s blood counts are unfortunately not good/high enough to participate in the London trial. All kind of … Weiterlesen →
As always, I can’t believe how time is flying by, by looking back at the last couple of weeks. But if you are going forward, it is hard to see the improvement. Looking back now, we can see a slow … Weiterlesen →
When we came home 2 weeks ago we thought we just have to get Luka back into shape and give him some time to recover. The first week he started slowly but steady and by the end of the week … Weiterlesen →
We actually managed to come home last friday evening…it was a rather bumpy road as Luka was scared that the pain, the headaches from the bleeding might reoccur…It took us and the doctor a while to convince him that we … Weiterlesen →
After a quite calm but short night we got spoiled by the optrician (or rather eye doctor) telling us after an examination that both (!) eyes are back to 80% of full vision! Very good improvement. Anyhow, the view to … Weiterlesen →
Quick update: the bleeding came from one metastasis that has been cyber knifed in January. We can not definitely tell why it started to bleed; because of the cyber knife or because of uncontrolled growth? we just leave this unanswered … Weiterlesen →
Luka had a brain haemorrhage last Friday literally out of the blue. 2 CT’s over the weekend showed that fortunately the bleeding stopped. We are in hospital and are awaiting results of todays MRI. We need to know if it … Weiterlesen →
I can’t believe how time is flying by. Sorry to keep you all waiting for such a long time but to be honest, we needed to ‚consolidate‘ and we still don’t know exactly what our path will be by now. … Weiterlesen →
After the scans last week and the tumor board (where all doctors together are discussing the scans and what to do) we had a long conversation yesterday. From the tumor side, the results for lungs and head are looking ’not … Weiterlesen →
Dubai was fantastic, we spent a terrific first communion of Luka a week later and now that all the things we were looking forward for so long passed by so quickly, we are terrified and waiting for the scans. Thursday … Weiterlesen →